If you ask how much a child’s life is worth, everyone will answer: it is priceless. And if we are talking about 3 or 5 years, can they be assigned a price? 14-year-old Nastya not only struggles with the disease, but leads the game of life with time, trying to "play" with him for at least several years. An expensive operation in Japan will allow the girl to walk for a while, hug her mother, communicate with her four-legged friends, enjoy the sunshine. Let's give Nastya the most expensive - time.
Nastya has a rare genetic disease: Peutz-Jeghers syndrome, when the organs of the gastrointestinal tract are covered with tumor-like formations. Her father and grandmother died from this disease. In developed countries, the practice of treating such a disease is the same: as necessary, remove tumors. Only in our country are not taken for it, because there are no specialists and high-tech equipment. After years of searching and correspondence with various clinics, my mother managed to find a doct